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The Rory Belle Foundation
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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About The Rory Belle Foundation
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Folder: NARS1 Disorder
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
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Scientific Publications
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NARS1 Hospital Passport
Practical Care & Templates Teri DeClercq 4/20/26 Practical Care & Templates Teri DeClercq 4/20/26

NARS1 Hospital Passport

Ein einfaches, personalisiertes Dokument, das Ärzten hilft, Ihr Kind zu verstehen und eine sichere, informierte Versorgung zu gewährleisten, insbesondere im Krankenhaus oder in Notfällen.

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Wir helfen Ihnen, mit Ihrem Arzt in Kontakt zu treten
Practical Care & Templates Teri DeClercq 4/20/26 Practical Care & Templates Teri DeClercq 4/20/26

Wir helfen Ihnen, mit Ihrem Arzt in Kontakt zu treten

Helfen Sie uns, mit Klinikern in Kontakt zu treten, die die Forschung unterstützen und die Versorgung von NARS1 verbessern können. Teilen Sie diese Ressourcen mit Ihrem Spezialisten, um das Gespräch zu beginnen. Verfügbar in mehreren Sprachen

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220