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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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About The Rory Belle Foundation
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You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
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Drug Repurposing, Explained
Potential Therapies & Research Explained Teri DeClercq 8/26/26 Potential Therapies & Research Explained Teri DeClercq 8/26/26

Drug Repurposing, Explained

What if a medication that already exists could help with NARS1 Disorder? Watch Rachel explain drug repurposing and the research behind three promising candidates. For each one, take away a family guide and a clinical reference to share with your child's doctor.

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Asparagin und NARS1: Ein Leitfaden für Familien
Potential Therapies & Research Explained Teri DeClercq 4/19/26 Potential Therapies & Research Explained Teri DeClercq 4/19/26

Asparagin und NARS1: Ein Leitfaden für Familien

Ein Überblick über Asparagin in NARS1, einschließlich dessen, was es ist, warum es erforscht wird und was die bevorstehende klinische Studie in Frankreich verstehen soll. Verfügbar in mehreren Sprachen

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Das Forschungs-Toolkit verstehen
Potential Therapies & Research Explained Teri DeClercq 4/1/26 Potential Therapies & Research Explained Teri DeClercq 4/1/26

Das Forschungs-Toolkit verstehen

Wir haben viele Tools in unserem Forschungskit – erfahren Sie hier mehr darüber.

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Review of Published NARS1 Literature - April 2025</span>
Potential Therapies & Research Explained Teri DeClercq 4/10/25 Potential Therapies & Research Explained Teri DeClercq 4/10/25

Review of Published NARS1 Literature - April 2025

Join genetic counselling student Sammy as he reviews the published literature on NARS1 disorder, covering key research findings and insights into the condition.

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

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